Rare Blood Disorders
Rare blood disorders are a group of rare genetic disorders where the blood does not clot properly. Existing therapies for blood disorders place a high burden on patients and caregivers, requiring infusions as often as multiple times each week over a patient’s lifetime.
At Sigilon, we recognize this burden and understand that living or caring for someone with a rare blood disorder is more than just an infusion. It’s a caregiver of a young child learning to recognize the signs of a bleed or an adult having trouble with venous access or having arthritis and limited joint mobility as a result of years of infusions and peaks and troughs of factor.